by Margaret K. Brooks, Esq.1a
Screening any population for substance abuse raises key legal and ethical concerns: how one can inquire about an individual's alcohol and drug use while continuing to respect that person's autonomy and privacy. Screening of older adults for substance abuse brings these concerns into particularly sharp focus - whether the person screening is a clinician, a staff member at a senior center, a member of the clergy, an adult protective service worker, a Meals-On-Wheels volunteer, a pharmacist, a community health worker, an adult day care worker, or staff member at a long-term care facility.
This appendix examines how the issues of autonomy and privacy (or confidentiality) affect the way providers working with older adults may screen for substance use problems. The first section discusses the relationship between patient or client autonomy and the provider's obligation to inform and counsel the older individual about the health risks of alcohol or other drug use. The second section concerns privacy of information about substance use problems: How can a provider keep accurate records and communicate with others concerned about the older individual's welfare without disclosing information that may subject the individual to scorn or create problems with family or third-party payers?
Americans attach extraordinary importance to being left alone. We pride ourselves on having perfected a social and political system that limits how far the government - and others - can control what we do. The principle of autonomy is enshrined in our Constitution, and our courts have repeatedly confirmed our right to make our own decisions for ourselves.
Most of us cherish our autonomy and fear its loss, particularly as we age. Although providers who screen or assess for substance abuse do so because they are genuinely concerned about an individual's health or functioning, screening means seeking very personal information - an unavoidable intrusion on a person's autonomy and privacy. Alert to suggestions that their judgment or abilities are impaired, older adults may not always see a provider's effort to "help" as benign.
Performed insensitively, screening or assessment may intensify denial. A person of any age who is "in denial" may not realize, or want to realize, that he has to cut back on or give up his intake of alcohol or prescription medications; an older person may view the provider's questions and suggestions as intrusive, threatening, and offensive. Suggestions that an older individual's complaint has an emotional basis may tap an underlying reluctance to acknowledge an emotional component to any problem and reinforce the individual's resistance. Because the substance abuse label carries a powerful stigma, an older individual may become alarmed if a provider intimates that alcohol or drug abuse may be involved. It will be tempting for the older individual to point to the "normal" infirmities of old age as the source of his difficulty rather than acknowledge a problem with alcohol or other drugs.
How can the provider raise the question of alcohol and drug use constructively, without eliciting a defensive response? Should she raise the issue and then drop it at the slightest hint of resistance on the part of the older individual? Or should she intervene more forcefully - with argument or by involving the family?
To fulfill her ethical responsibility, the provider should do more than simply raise the issue. As the Consensus Panel suggests, most older adults are unaware that their metabolism of alcohol and prescription drugs changes as they age and that lower amounts of alcohol and medicines may incapacitate them. Respect for a person's autonomy means informing him of all relevant medical facts and engaging him in a discussion about his alternatives. If there is a substance abuse problem, the provider can supply the information and encouragement, but only the person with the problem has the power to change what he is doing. Respecting the patient's autonomy - his right to make choices - is central to encouraging that change.
Aside from perceived threats to autonomy, an older person may also be concerned about the practical consequences of admitting a substance use problem. Such patients may find it difficult or impossible to obtain coverage for hospitalization costs if an insurer or health maintenance organization (HMO) learns that their traumatic injuries were related to alcoholism. Relationships with a spouse, children, grandchildren, or friends may suffer. Adverse consequences such as these may discourage patients with substance use problems from seeking treatment.
Concern about privacy and confidentiality is fueled by the widespread perception that people with substance use disorders are weak and/or morally impaired. For an older person, this concern may well be compounded by an apprehension that others may view acknowledgment of a substance use disorder as a sign of inability to continue living independently. If the individual is having family problems - with a spouse or with children - information about substance use could have an adverse impact on resolution of those problems. Or the individual may experience difficulties with health insurance.
The concern about the adverse effects that social stigma and discrimination have on patients in recovery (and how those adverse effects might deter people from entering treatment) led the Congress to pass legislation and the U.S. Department of Health and Human Services to issue a set of regulations to protect information about individuals' substance abuse. The law is codified at 42 U.S.C.§ 290dd-2. The implementing Federal regulations, "Confidentiality of Alcohol and Drug Abuse Patient Records," are contained in 42 CFR Part 2 (Vol. 42 of the Code of Federal Regulations, Part 2).
The Federal law and regulations severely restrict communications about identifiable individuals by "programs" providing substance use diagnosis, treatment, or referral for treatment (42 CFR§ 2.11). The purpose of the law and regulations is to decrease the risk that information about individuals in recovery will be disseminated and that they will be subjected to discrimination and to encourage people to seek treatment for substance use disorders.
In most settings where older adults receive care or services, Federal confidentiality laws and regulations do not apply.1b Providers should be aware, however, that if a health care practice or social service organization includes someone whose primary function is to provide substance abuse assessment or treatment and if the practice or organization benefits from "Federal assistance,"2 that practice or organization must comply with the Federal law and regulations and implement special rules for handling information about patients who may have substance abuse problems.3
Moreover, the fact that most providers for older adults are not subject to the Federal rules does not mean that they can handle information about their clients' substance use problems in a cavalier manner. Because of the potential for damage, providers should always handle such information with great care.
Although Federal rules do not restrict how most providers gather and handle information about an older individual's substance abuse, there are other rules that may limit how such information may be handled. State laws offer some protection to medical and mental health information about patients and clients. Most doctors, social service workers, and clients think of these laws as the "doctor-patient privilege" or "social worker-client privilege" or "psychotherapist-patient privilege."
Strictly speaking, these privileges are rules of evidence that govern whether a professional provider can be asked or compelled to testify in a court case about a patient or client. In many States, however, laws offer wider protection. Some States have special confidentiality laws that explicitly prohibit physicians, social workers, psychologists, and others from divulging information about patients or clients without consent. States often include such prohibitions in professional licensing laws; such laws generally prohibit licensed professionals from divulging information about patients or clients, and they make unauthorized disclosures grounds for disciplinary action, including license revocation.
Each State has its own set of rules, which means that the scope of protection offered by State law varies widely. Whether a communication is "privileged" or "protected" may depend on a number of factors:
Which professions and which practitioners within each profession are covered depends on the State where the professional practices. California, which grants its citizens "an inalienable right to privacy" in its Constitution, has what may be the most extensive protections for medical (including mental health) information. California law protects communications with a wide variety of professionals, including licensed physicians, nurses, and psychotherapists (which includes clinical social workers, psychologists, marriage and family counselors), as well as many communications with trainees practicing under the supervision of a number of these professionals. A California court has held that information given to an unlicensed professional by an uneducated patient may be privileged if the patient reasonably believes the professional is authorized to practice medicine.4
Other States' laws cover fewer kinds of professionals. In Missouri, for example, protection is limited to communications with State-licensed psychologists, clinical social workers, professional counselors, and physicians.
Depending on their professional training (and licensing), primary care physicians, physician assistants, nurse-practitioners, nurses, psychologists, social workers, and others may be covered by State prohibitions on divulging information about patients or clients. Note that even within a single State, the kind of protection afforded information may vary from profession to profession. Professional providers should learn whether any confidentiality law in the State where they practice applies to their profession.
State laws vary tremendously in this area, too. Some States protect only the information that a patient or client communicates to a professional in private, in the course of the medical or mental health consultation. Information disclosed to a clinician in the presence of a third party (like a spouse) is not protected. Other States, such as California, protect all information the patient or client tells the professional or the professional gains during examination.5 California also protects other information acquired by the professional about the patient's mental or physical condition, as well as the advice the professional gives the patient.6 When California courts are called upon to decide whether a particular communication of information is privileged, State law requires them to presume that it is.
California affords great protection to communications between patients and psychotherapists, a term that covers a wide range of professions. Not only are communications by and to the patient protected, information communicated by a patient's intimate family members to therapists and psychiatric personnel7 is also protected. California also protects information the patient discloses in the presence of a third party or in a group setting.
Understanding what medical information is protected requires professional providers to know whether State law recognizes the confidentiality of information in the many contexts in which the professional acquires it.
Some States protect medical or mental health information only when that information is sought in a court proceeding. If a professional divulges information about a patient or client in any other setting, the law in those States will not recognize that there has been a violation of the individual's right to privacy. Other States protect information in many different contexts and may discipline professionals who violate their patients' privacy, allow patients to sue them for damages, or criminalize behavior that violates patients' privacy. The diversity of State rules in this area compounds the difficulty professionals face in becoming knowledgeable about what rules apply to them.
All States permit health, mental health, and social service professionals to disclose information if the patient or client consents. However, each State has different requirements regarding consent. In some States, consent can be oral; in others, it must be written. States that require written consent sometimes require that certain elements be included in the consent form or that everyone use a State-mandated form. Some States have different consent forms with different requirements for particular diseases.
Consent is not the only exception. All States also require the reporting of certain infectious diseases to public health authorities and some require the reporting of elder abuse to protective service agencies, although definitions of "infectious disease" and "elder abuse" vary. And most States require health care professionals and mental health counselors to report to the authorities threats patients make to inflict harm on others. There are States that permit or require health care professionals to share information about patients with other health care professionals without the patients' consent, but some limit the range of disclosure for certain diseases, like HIV. Most States make some provision for communicating information to health insurance or managed care companies.
Many of the situations that physicians and social service workers face daily - processing health claims or public benefit applications, for example - are covered by one of these exceptions. To fully understand the "rules" regarding privacy of medical and mental health information, professionals must also know about the exceptions to those rules. Those exceptions are generally in the statute books - in either the sections on evidence or the professional licensing sections, or both. The state licensing authority as well as professional associations can usually help answer questions about State rules and the exceptions to those rules.
To determine the "law" - that is, the rule one must follow - in any particular area, an attorney will search for statutes, regulations, administrative rulings, and court decisions. There is no question that in this country, the courts play a large role in "making" law - particularly in an area like privacy, which involves human behavior, shades of meaning, and intent. No legislator drafting a statute (or bureaucrat drafting a regulation) can foresee all the circumstances under which it may be applied. When one party sues another, a court is forced to decide whether a provider's disclosure of medical information was appropriate or whether such information should be disclosed during the lawsuit itself.
For example, after a car crash, the drivers may sue each other and ask the court to order the disclosure of medical records. Or the victim of an assault by an adolescent may sue the parents and seek disclosure of medical records to prove they knew their child was dangerous. How a court decides whether to order disclosure in such cases will depend on a variety of factors, including State law and regulation, court rules, and the relevance of the information sought to the dispute at hand. Similarly, when a patient or client sues a professional for releasing information to someone without her consent, the court will be called upon to weigh a variety of factors to decide whether the disclosure violated what the State recognizes as the patient's privacy.
Over time, court decisions like these add flesh to the bare statutory and regulatory rules and suggest how those rules will be applied the next time. When a difficult case arises that does not fit neatly within the rule of law as understood, it may be helpful to consult with an attorney familiar with the rules and how the State's courts are likely to interpret them.
States differ in the ways they discipline professionals for violations of patients' or clients' privacy. In some States, violation of confidentiality is a misdemeanor, punishable by a fine or short jail term. In many States, the professional licensing agency has the power to bring disciplinary charges against a professional who violates a client's privacy. Such charges may result in censure or license suspension or revocation. Finally, the State may permit the aggrieved patient or client to sue the professional for damages caused by the violation of his right to confidentiality.
The reality is, these enforcement mechanisms are rarely used. States rarely prosecute privacy violation offenses and professional disciplinary committees in most States are more concerned with other kinds of professional infractions. That is not to say that violation of a patient's privacy is cost-free. A patient or client who thinks he has been hurt by a professional's indiscretion is free to sue; while such cases are difficult for clients to win, they can cause the professional and the organization employing her a good deal of grief - financial, emotional, and professional. Even short of litigation, no professional wants to acquire the reputation of being thoughtless or indiscreet.
One way for a professional to safeguard clients' privacy and avoid breaking the rules is to develop a charting, or record-keeping, system that is accurate but still protects clients' rights to privacy and confidentiality. It is important to remember how many people could see a client's medical, mental health, or social service record. A medical chart, for example, will be seen by the medical office staff, the insurance company (or HMO or managed care organization [MCO]), and in the event of a referral, another set of clinicians, nurses, clerical workers, and insurers. If the patient is involved in litigation and his medical or mental health is in issue, the court will most likely order disclosure of his chart or file in response to a subpoena.
When a provider documents the results of substance abuse screening or assessment or flags an issue to be raised the next time he sees the client, he should use neutral notations or reminders that do not identify the problem as being substance-use-related. Following are three record-keeping systems that comply with the stringent Federal confidentiality regulations, protect clients' autonomy and privacy, and can be used in a wide variety of settings (TIP 16, Alcohol- and Other-Drug Screening of Hospitalized Trauma Patients, CSAT, 1995):
The push toward computerization of medical records will complicate the problem of keeping sensitive information in medical records private. Currently, there is protection afforded by the cumbersome and inefficient way many, if not most, medical, mental health, and social service records make their way from one provider to another. When records are stored in computers, retrieval can be far more efficient. Computerized records may allow anyone with a disc and access to the computer in which the information is stored to instantly copy and carry away vast amounts of information without anyone's knowledge. Modems that allow communication about patients among different components of a managed care network extend the possibility of unauthorized access to anyone with a modem, the password(s), and the necessary software. The ease with which computerized information can be accessed can lead to "casual gossip" about a client, particularly one of importance in a community, making privacy difficult to preserve.
One of the trickiest issues is whether and how providers of older adults health care should communicate with others about their clients' substance use problems. Communications with others concerned about the client may confirm the provider's judgment that the client has a substance use problem or may be useful in persuading a reluctant client that treatment is necessary.
Before a provider attempts to gather information from other sources or enlist help for a patient or client struggling with recovery, he should ask the older client's permission to do so. Speaking with relatives (including children), doctors, or other health and mental health professionals not only intrudes on the client's autonomy, it also poses a risk to her right to privacy. Gathering information (or responding to questions about a client's problems) from a spouse, child, or other provider can involve an explicit or implicit disclosure that the provider believes the client or patient has a substance use problem. And the provider making such a disclosure may be inadvertently stepping on a land mine.
Making inquiries or answering questions behind the client's back may seriously jeopardize the trust that has developed between the provider and the client and undermine his attempt to offer help. The professional who talks to the client's son and then confronts her with their joint conclusions runs the risk that he will damage his relationship with the client. Feeling she can no longer trust the provider and angry that he has shown little respect for her autonomy or privacy, the client may refuse to participate in any further discussions about her problems.
Most older clients or patients are fully capable of comprehending the information and weighing the alternatives offered by a provider and making and articulating decisions. A small percentage of older patients or clients are clearly incapable of participating in a decision-making process. In such cases, the older person may have signed a health care proxy or may have a court-appointed guardian to make decisions in his stead.
The real difficulty arises when a provider is screening or assessing an older person whose mental capacity lies between those two extremes. The client or patient may have fluctuating capacity, with "good days" and "bad days" or periods of greater or lesser alertness depending upon the time of day. His condition may be transient or deteriorating. His diminished capacity may affect some parts of his ability to comprehend information but not others.
How can the provider determine whether the patient or client understands the information she is presenting, appreciates the implication of each alternative, and is able to make a "rational" decision, based on his own best interests? There is no easy answer to this question. One can, however, suggest several approaches.
Maximizing autonomy. The provider can help the patient or client who appears to have diminished capacity through a gradual information-gathering and decisionmaking process. Information the client needs should be presented in a way that allows the patient or client to absorb it gradually. The provider should clarify and restate information as necessary and may find it helpful to summarize the issues already covered at regular intervals. Each alternative and its possible consequences should be laid out and examined separately. Finally, the provider can help the client identify his values and link those values to the alternatives presented. By helping the patient or client narrow his focus and proceed step-by-step, the provider may be able to assure herself that the client, despite his diminished capacity, has understood the decision to be made and acted in his own best interest.
Enlisting the help of a health or mental health professional. If working with the patient or client in a process of gradual information-gathering and decision-making is not making headway, the provider can suggest that together they consult a health or mental health professional. Perhaps there is someone who has known the patient or client for a number of years who has a grasp of the client's history and better understanding of the obstacles to decision-making. Or, the provider may suggest a specialist who can help determine why the patient is having difficulty and whether he has the capacity to make this kind of decision.
Enlisting the help of family or close friends. Another approach is for the provider to suggest to the patient or client that they call in a family member or close friend who can help them organize the information and sort through the alternatives. Asking the client who he thinks would be helpful may win his endorsement of this approach.
When the client cannot grasp the information or come to a decision. If the provider's efforts to inform the patient or client and help him reach a decision are unsuccessful, she might seek his permission to consult a family member or close friend to discuss the problem. If the client consents, the provider should lay out her concerns for the family member or friend. It may be that the client has already planned for the possibility of his incapacity and has signed a durable power of attorney or a health care proxy.
Guardianship. A guardian9 is a person appointed by a court to manage some or all aspects of another person's life. Anyone seeking appointment of a guardian must show the court (1) that an individual is disabled in some way by disease, illness, or senility, and (2) that the disability prevents him from performing the tasks necessary to manage an area or areas of his life.
Each state handles guardianship proceedings differently, but some principles apply across the board: Guardianship is not an all-or-nothing state. Courts generally require that the person seeking appointment of a guardian prove the individual's incapacity in a variety of tasks or areas. Courts may apply different standards to different life tasks - managing money, managing a household, making health care decisions, entering contracts. A person may be found incompetent to make contracts and manage money but not to make his own health care decisions (or vice versa), and the guardianship will be limited accordingly.
Guardianship diminishes the older adult's autonomy and is an expensive process. It should, therefore, be considered only as a last resort.
The provider has persuaded the patient or client to try outpatient treatment and knows the director of an excellent program in the immediate area. Rather than simply picking up the phone and letting the director know she has referred the patient, she should consult the patient about the specific treatment facility. Though it may seem that consent to treatment is the same as consent to referral to a particular facility, it takes very little time to get the patient's consent, demonstrates respect for the client or patient, and protects the provider if, say, the treatment program's director is a relative or has some other connection to the client.
The structure of health, mental health, and ancillary social service care for older adults is changing rapidly. Of course, older adults are covered by Medicare, but many have supplementary insurance or have joined HMOs or are entitled to government-sponsored social services because of particular medical, physical, or mental disabilities. How should the professional provider communicate with these different types of entities?
Traditional health insurance programs offering reimbursement to patients for health care expenditures typically require patients to sign claim forms containing language consenting to the release of information about their care. The patient's signature authorizes the practitioner to release such information. Although HMOs do not require patients to submit claim forms, both practitioners and patients understand that the HMO or MCO can review clinical records at any time and may well review records if it has questions about the patient's or client's care.
Should the provider rely on the patient's signed consent on the health insurance form or the HMO contract and release what she has in her chart (or a neutral version of that information)? Or should she consult the patient?
The better practice is for the provider to frankly discuss with the patient what information she intends to disclose, the alternatives open to the client (disclosure and refusal to disclose), and the likely consequences of those alternatives. Will the information the provider sends explicitly or implicitly reveal the nature of the patient's problem? Does the client's chart contain a substance abuse diagnosis? Once again, the provider confronts the question of how such information should be recorded. Has she balanced the need for accuracy with discretion and a respect for patients' privacy? Finally, even if the chart or file contains explicit information about the client's substance use problem, can the provider characterize the information and her diagnosis in more neutral terms when releasing information to the third-party payer?
Once the client understands what kind and amount of information the provider intends to send a third-party payer, he can decide whether to agree to the disclosure. The provider should explain that if she refuses to comply with the third-party payer's request for information, it is likely that at least some related services will not be covered. If the client expresses concern, she should not mislead him, but confirm that once a third-party payer learns he has had a substance use problem, he could and may lose either some of his insurance coverage or parts of other entitlements and be unable to obtain other coverage.10
The final decision should be the client's. He may well decide to pay out of pocket. Or he may agree to the limited disclosure and ask the provider to inform him if more information is requested.
As managed care becomes more prevalent throughout the country, medical and mental health providers are finding that third-party payers demand more and more information about patients and about the treatment provided to those patients in order to monitor care and contain costs. Providers need to be sensitive about the amount and kind of information they disclose because there is a risk that this information may be used to deny future benefits to the client. Chart notes may also contain detailed and very personal information about family life that may be unnecessary for a third-party payer to review in order to determine whether and what kind of treatment should be covered.
As in so many other areas involving patients' privacy, it is best to follow two simple rules: First, keep notations and documentation as neutral as possible while maintaining professionally acceptable standards of accuracy. Second, consult the client and let the client decide whether to agree to the disclosure.
If a doctor, psychologist, social worker, or other provider gets a call from a lawyer asking about a patient or client, or a visit from a law enforcement officer asking to see records, or a subpoena to testify or produce medical records, what should he or she do? As in other matters of privacy and confidentiality, (1) consult the patient, (2) use common sense, and (3) as a last resort, consult State law (or a lawyer familiar with State law).
Responding to lawyers' inquiries. Say a lawyer calls and asks about Emma Bailey's medical, mental health, or social service history or treatment. As a first approach to the question, the provider could tell the lawyer, "I don't know that I have a client with that name. I'd have to check my records"11 or tell the caller that he must consult with his client before having a conversation about her: "I'm sure you understand that I am professionally obligated to speak with Emma Bailey before I speak with you." It will be hard for any lawyer to disagree with this statement.
The provider should then ask the client if she knows what information the caller is seeking and whether the client wants him to disclose that or any other information. He should leave the conversation with a clear understanding of the client's instructions - whether he should disclose the information, and if so, how much and what kind. It may be that the lawyer is representing the client in a case and the client wants the provider to share all the information he has. On the other hand, the lawyer may represent someone with whom the client has a dispute. There is nothing wrong with refusing to answer a lawyer's questions.12
If the lawyer represents the client and the client asks the provider to share all information, the provider can speak freely with the lawyer. However, if the provider is answering the questions of a lawyer who does not represent the client (but the client has consented to the disclosure of some information), the provider should listen carefully to each question, choose his words with care, limit each answer to the question asked, and take care not to volunteer information not called for.
Visits by law enforcement. A police officer, detective, or probation officer who asks a provider to disclose medical, mental health, or social service information about a client or a client's case records can usually be handled in a similar manner:13 The provider can safely tell the officer, as he might a lawyer, "I'm sure you understand that I am professionally obligated to speak with my patient before I speak to you."14
The provider should then speak with the client to find out whether she knows the subject of the officer's inquiry, whether she wants the provider to disclose information and if so, how much and what kind. The caretaker might end the conversation by asking whether there are any particular areas the client would prefer he not discuss with the officer.
When a law enforcement officer comes armed with a search warrant, the answer is different. In this case, the provider has no choice but to hand over the records listed in the warrant.
Responding to subpoenas. Subpoenas come in two varieties. One is an order requiring a person to testify, either at a deposition out of court or at a trial. The other - known as a subpoena duces tecum - requires a person to appear with the records listed in the subpoena. Depending on the State, a subpoena can be signed by a lawyer or a judge. Unfortunately, it cannot be ignored.
In this instance, the provider's first step should be to call Emma Bailey - the client about whom he is asked to testify or whose records are sought - and ask what the subpoena is about. It may be that the subpoena has been issued by or on behalf of Emma's lawyer, with Emma's consent. However, it is equally possible that the subpoena has been issued by or on behalf of the lawyer for an adverse party. If that is the case, the provider's best option is to consult with Emma's lawyer to find out whether the lawyer will object - ask the court to "quash" the subpoena - or whether the provider should simply get the client's consent to testify or turn over her records.15 An objection can be based on a number of grounds and can be raised by any party as well as by the person whose medical information is sought. If the provider is covered by a State statutory privilege, he may be able to assert the client's privilege for her.
It is essential for those who work with older adults to respect their clients' autonomy and rights to privacy and confidentiality if they are to be effective in screening and assessing clients for substance use disorders and persuading them to cut down their use or enter treatment. In most situations, providers can follow these simple rules: (1) consult the client, (2) let the client decide, and (3) be sensitive to how information is recorded or disclosed. It is only as a last resort that the provider will have to consult State law or a lawyer.
1a Margaret K. Brooks is an independent consultant in Montclair, New
Jersey.
1b For many years, there was confusion about whether general medical
care settings such as primary care clinics or hospital emergency rooms were
subject to the Federal law and regulations because they provided substance
abuse diagnosis, referral, and treatment as part of their services. In 1995,
DHHS revised the definition of the kinds of "programs" subject to the
regulations that made it clear that the regulations do not generally apply
to a general medical care facility unless that facility (or person) holds
itself out as providing, and provides, alcohol or drug abuse diagnosis,
treatment, or referral for treatment . . . (42 CFR§ 2.11).
The full text of § 2.11 now reads:
Program means:
(a) An individual or entity (other than a general medical care facility) who
holds itself out as providing, and provides, alcohol or drug abuse diagnosis,
treatment, or referral for treatment; or
(b) An identified unit within a general medical facility which holds itself out
as providing and provides, alcohol or drug abuse diagnosis, treatment, or
referral for treatment; or
(c) Medical personnel or other staff in a general medical care facility whose
primary function is the provision of alcohol or drug abuse diagnosis,
treatment, or referral for treatment and who are identified as such providers.
(See § 2.12(e)(1) for examples.)
60 Federal Register 22,297 (May 5, 1995).
2 The regulations provide that "federally assisted"
programs include:
42 C.F.R.§ 2.12(b).
3 For a full explanation of the Federal law and regulations, see TIP 8, Intensive
Outpatient Treatment for Alcohol and Other Drug Abuse (CSAT, 1994) and TAP 13, Confidentiality
of Patient Records for Alcohol and Other Drug Treatment (CSAT, 1994).
4 Luhndorff v. The Superior Court of Tulare County, 166 CA 3d
485, 212 Cal. Rptr. 516 (5th District, 1985). Interestingly, Luhndorff
was a criminal case in which the prosecution sought the records of an
unlicensed social worker who interviewed the defendant, diagnosed his problem,
determined the appropriate treatment, and treated him for 3 months. The social
worker was working under a licensed individual's supervision. The defendant
thought the social worker was a psychiatrist.
5 Section 451 of the California Evidence Code codifies the
doctor-patient privilege. See Grosslight v. Superior Court of Los Angeles,
42 CA 3d 502, 140 Cal. Rptr. 278 (1977), in which the court held that
information communicated by the parents of a minor psychiatric patient to her
doctor and his secretary was privileged, even though the parents were being
sued by someone the child injured on the theory that the parents knew their child
was a danger to others.
6 Note that the breadth of the protection may vary according to the
clinician's profession.
7 Grosslight v. Superior Court of Los Angeles, 72 Cal. App.
3d 502, 140 Cal. Rptr. 278 (1977), interpreting Section 451 of the California
Evidence Code (see footnote 5).
8 The Consensus Panel for TIP 16 noted: "Physical separation of
clinical information is not unusual. Patient charts from past years are
generally kept in a separate location. Physicians routinely request charts to
be sent to them from this location so that they can review historical clinical
information about the patient. In addition, nurses are quite accustomed to
keeping some medications locked up and accessible only to designated
personnel." (TIP 16, CSAT,
1995, p. 76)
9 In some States, a guardian is referred to as a fiduciary,
conservator, or committee. The person who has a guardian is generally called a
"ward" or an "incapacitated person."
10 Some States prohibit insurance companies from discriminating
against individuals who have received substance abuse treatment; however, these
kinds of discriminatory practices continue. Insurance companies routinely share
information about applicants for life and disability insurance through the
Medical Information Bureau - a data bank maintained by a private organization
and supported by the industry.
11 In fact, in some States, depending on the provider's profession,
the identity of patients or clients as well as their records are protected.
Therefore, professionals should find out whether disclosing a patient's name or
acknowledging that the individual about whom the lawyer is inquiring is a
client would be considered a violation of the client's right to
confidentiality.
12 A firm, but polite, tone is best. If confronted by what could be
characterized as "stonewalling," a lawyer may be tempted to subpoena
the information he is asking for, and more. The clinician will not want to
provoke the lawyer into taking action that will harm the patient.
13 The only exception to this advice would be if the provider knew
the patient was a fugitive being sought by law enforcement. In that case, in
some States, a refusal to assist or give officers information might be a
criminal offense.
14 As noted above, in those States where the identity of clients or
patients as well as their medical or mental health records are protected, the
professional should give a noncommittal response, such as "I'll have to
check my records to see whether I have such a patient."
15 In most instances, the provider is not legally required to notify
the client or get his consent to release records that have been subpoenaed.
However, notifying the client shows respect for his autonomy and privacy and
gives him an opportunity to object to the subpoena.
Appendix B contains the following items:
The following guidelines, questions, and scoring instructions are excerpted from Babor, T.F.; de la Fuente, J.R.; Saunders, J.; and Grant, M. AUDIT: The Alcohol Use Disorders Identification Test: Guidelines for Use in Primary Health Care. Geneva, Switzerland: World Health Organization, 1992.
Screening with AUDIT can be conducted in a variety of primary care settings by persons who have different kinds of training and professional backgrounds. The core AUDIT is designed to be used as a brief structured interview or self-report survey that can easily be incorporated into a general health interview, lifestyle questionnaire, or medical history. When presented in this context by a concerned and interested interviewer, few patients will be offended by the questions. The experience of the WHO collaborating investigators (Saunders and Aasland, 1987) indicated that AUDIT questions were answered accurately regardless of cultural background, age, or gender. In fact, many patients who drank heavily were pleased to find that a health worker was interested in their use of alcohol and the problems associated with it.
In some patients, the AUDIT questions may not be answered accurately because they refer specifically to alcohol use and problems. Some patients may be reluctant to confront their alcohol use or to admit that it is causing them harm. Individuals who feel threatened by revealing this information to a health worker, who are intoxicated at the time of the interview, or who have certain kinds of mental impairment may give inaccurate responses. Patients tend to answer most accurately when
Health workers should try to establish these conditions before AUDIT is given. When these conditions are not present, the Clinical Screening Instrument following the AUDIT questionnaire may be more useful. Alternatively, health workers may also use AUDIT to guide an interview with a concerned friend, spouse, or family member. In some settings (such as waiting rooms), AUDIT may be administered as a self-report questionnaire, with instructions for the patient to discuss the meaning of the results with the primary care worker. In addition to these general considerations, the following interviewing techniques should be used:
Record answers carefully, using the comments section of the interview brochure to explain any special circumstances, additional information, or clinical inferences. Often patients will provide the interviewer with useful comments about their drinking that can be valuable in the interpretation of the total AUDIT score.
The AUDIT
Questionnaire |
||||
Circle the number that comes closest to the patient's
answer. |
||||
(0) Never |
(1) Monthly or less |
(2) Two to four times a month |
(3)Two to three times a week |
(4)Four or more times a week |
2. How many drinks containing alcohol do you have on a typical day when you are drinking? [Code number of standard drinks.1 |
||||
(0) 1 or 2 |
(1) 3 or 4 |
(2 5 or 6 |
(3) 7 to 9 |
(4)10 or more |
3. How often do you have six or more drinks on one occasion? |
||||
(0) Never |
(1) Less than monthly |
(2) Monthly |
(3)Weekly |
(4) Daily or almost daily |
4. How often during the last year have you found that you were not able to stop drinking once you had started? |
||||
(0) Never |
(1) Less than monthly |
(2) Monthly |
(3)Weekly |
(4)Daily or almost daily |
5. How often during the last year have you failed to do what was normally expected from you because of drinking? |
||||
(0) Never |
(1) Less than monthly |
(2) Monthly |
(3)Weekly |
(4)Daily or almost daily |
6. How often during the last year have you needed a first drink in the morning to get yourself going after a heavy drinking session? |
||||
(0) Never |
(1) Less than monthly |
(2) Monthly |
(3)Weekly |
(4)Daily or almost daily |
7. How often during the last year have you had a feeling of guilt or remorse after drinking? |
||||
(0) Never |
(1) Less than monthly |
(2) Monthly |
(3)Weekly |
(4)Daily or almost daily |
8. How often during the last year have you been unable to remember what happened the night before because you had been drinking? |
||||
(0) Never |
(1) Less than monthly |
(2) Monthly |
(3)Weekly |
(4)Daily or almost daily |
9. Have you or someone else been injured as a result of your drinking? |
||||
(0) No |
(2) Yes, but not in the last year |
(4)Yes, during the last year |
|
|
10. Has a relative or friend or a doctor or other health worker been concerned about your drinking or suggested you cut down? |
||||
(0) No |
(2) Yes, but not in the last year |
(4)Yes, during the last year |
|
|
1 In determining the
response categories it has been assumed that one drink contains 10 g
alcohol. In countries where the alcohol content of a standard drink differs by
more than 25 percent from 10 g, the response category should be modified
accordingly.
Record sum of individual item scores here. ____________________________
Procedure for
scoring AUDIT |
|||||
Questions 1-8 are scored 0, 1, 2, 3, or 4. Questions 9 and 10 are scored 0, 2, or 4 only. The response is as follows: |
|||||
|
0 |
1 |
2 |
3 |
4 |
Question 1 |
Never |
Monthly or less |
Two to four times per month |
Two to three times per week |
Four or more times per week |
Question 2 |
1 or 2 |
3 or 4 |
5 or 6 |
7 to 9 |
10 or more |
Question 3-8 |
Never |
Less than monthly |
Monthly |
Weekly |
Daily or almost daily |
Question 9-10 |
No |
|
Yes, but not in the last year |
|
Yes, during the last year |
The minimum score (for nondrinkers) is 0 and the maximum possible score is 40.
A score of 8 or more indicates a strong likelihood of hazardous or harmful
alcohol consumption.
AUDIT
"Clinical" Questions and Procedure |
|||
Trauma history |
|||
1. Have you injured your head since your 18th birthday? |
|||
(3) Yes |
(0) No |
||
2. Have you broken any bones since your 18th birthday? |
|||
(3) Yes |
(0) No |
||
Clinical examination |
|||
1. Conjunctival injections |
|||
(0) NOT PRESENT |
(1) MILD |
(2) MODERATE |
(3) SEVERE |
2. Abnormal skin vascularization |
|||
(0) NOT PRESENT |
(1) MILD |
(2) MODERATE |
(3) SEVERE |
3. Hand tremor |
|||
(0) NOT PRESENT |
(1) MILD |
(2) MODERATE |
(3) SEVERE |
4. Tongue tremor |
|||
(0) NOT PRESENT |
(1) MILD |
(2) MODERATE |
(3) SEVERE |
5. Hepatomegaly |
|||
(0) NOT PRESENT |
(1) MILD |
(2) MODERATE |
(3) SEVERE |
GGT Values* |
Lower normal |
(0-30 IU/1)=(0) |
|
|
Upper normal |
(30-50 IU/1)=(1) |
|
|
Abnormal |
(50 IU/1)=(3) |
|
*These values may change with laboratory methods, and standards may vary with sex and age of the drinker.
Record sum of individual item scores here. ____________________________
As indicated by the AUDIT questions, each item is scored by checking the response category that comes closest to the patient's answer.
On the basis of evidence from the validation study (Saunders et al., in press), two cutoff points are suggested, depending on the purpose of the screening program or the nature of the research project. A score of 8 or more produces the highest sensitivity, while a score of 10 or more results in higher specificity. In general, high scores on the first three items in the absence of elevated scores on the remaining items suggest hazardous alcohol use. Elevated scores on items 4 through 6 imply the presence or emergence of alcohol dependence. High scores on the remaining items suggest harmful alcohol use. As discussed in the following section on diagnosis, each of these areas of alcohol-related problems implies different types of management.
The Clinical Screening Instrument is considered to be elevated when the total score is 5 or greater. Here, too, the examiner should give careful consideration to the different meanings attributed to alcohol-related trauma, physical signs, and the elevated liver enzyme. It should be noted that false positives can occur when the individual is accident prone, uses drugs (such as barbiturates) that induce GGT, or has hand tremor because of nervousness, neurological disorder, or nicotine dependence.
Saunders, J.B., and Aasland, O.G.
WHO Collaborative Project on the Identification and Treatment of Persons with Harmful Alcohol Consumption. Report on Phase I: Development of a Screening Instrument. Geneva, Switzerland: World Health Organization, 1987.
Saunders, J.B.; Aasland, O.G.; Babor, T.F.; de la Fuente, J.R.; and Grant, M.
WHO collaborative project on early detection of persons with harmful alcohol consumption. II. Development of the screening instrument "AUDIT." British Journal of Addictions, in press.
The Index of Independence in Activities of Daily Living is based on an evaluation of the functional independence or dependence of patients in bathing, dressing, going to the toilet, transferring, continence, and feeding. Specific definitions of functional independence and dependence appear below the index. (These definitions can be used to convert the data recorded in the evaluation form in the next section into an Index of ADL grade.)
A--Independent in feeding, continence, transferring, going to the toilet, dressing, and bathing.
B--Independent in all but one of these functions.
C--Independent in all but bathing and one additional function.
D--Independent in all but bathing, dressing, and one additional function.
E--Independent in all but bathing, dressing, going to the toilet, and one additional function.
F--Independent in all but bathing, dressing, going to toilet, transferring, and one additional function.
G--Dependent in all six functions.
Other--Dependent in at least two functions, but not classifiable as C, D, E, or F.
Independence means without supervision, direction, or active personal assistance, except as specifically noted below. This is based on actual status and not on ability. A patient who refuses to perform a function is considered as not performing the function, even though he is deemed able.
Bathing (Sponge, Shower, or Tub)
Independent: assistance only in bathing a single part (as back or disabled extremity) or bathes self completely
Dependent: assistance in bathing more than one part of body; assistance in getting in or out of tub or does not bathe self
Dressing
Independent: gets clothes from closets and drawers; puts on clothes, outer garments, braces; manages fasteners; act of tying shoes is excluded
Dependent: does not dress self or remains partly undressed
Going to Toilet
Independent: gets to toilet; gets on and off toilet; arranges clothes; cleans organs of excretion; (may manage own bedpan used at night only and may or may not be using mechanical supports)
Dependent: uses bedpan or commode or receives assistance in getting to and using toilet
Transfer
Independent: moves in and out of bed independently and moves in and out of chair independently (may or may not be using mechanical supports)
Dependent: assistance in moving in or out of bed and/or chair; does not perform one or more transfers
Continence
Independent: urination and defecation entirely self-controlled
Dependent: partial or total incontinence in urination or defecation, partial or total control by enemas, catheters, or regulated use of urinals and/or bedpans
Feeding
Independent: gets food from plate or its equivalent into mouth; (precutting of meat and preparation of food, as buttering bread, are excluded from evaluation)
Dependent: assistance in act of feeding (see above); does not eat at all or parental feeding
Name_________________________ Day of Evaluation________________________
For each area of functioning listed below, check description that applies. (The word "assistance" means supervision, direction, or personal assistance.)
Bathing--either sponge bath, tub bath, or shower.
Dressing--gets clothes from closets and drawers--including underclothes, outer garments, and using fasteners (including braces if worn)
Toileting--going to the "toilet room" for bowel and urine elimination, cleaning self after elimination, and arranging clothes
Transfer--
Continence--
Feeding--
After filling out the form, convert the data collected into an ADL grade by using the definitions provided in the introductory section.
Source: Katz, S.; Ford, A.B.; Moskowitz, R.W.; Jackson, B.A.; and Jaffe, M.W. Studies of Illness in the Aged. The Index of ADL: A standardized measure of biological and psychosocial function. Journal of the American Medical Association 185:914-919, 1963.
Katz, S.; Downs, T.D.; Cash, H.R.; and Grotz, R.C.
Progress in development of the Index of ADL. Gerontologist 10(1):20-30, 1970.
Index of ADL. Medical Care 14(suppl. 5):116-118. 1976.
Self-Rated Version Extracted From the Multilevel Assessment Instrument (MAI) |
||
1. |
Can you use the telephone: |
|
|
Without help, |
3 |
|
With some help, or |
2 |
|
Are you completely unable to use the telephone? |
1 |
2. |
Can you get to places out of walking distance: |
|
|
Without help, |
3 |
|
With some help, or |
2 |
|
Are you completely unable to travel unless special arrangements are made? |
1 |
3. |
Can you go shopping for groceries: |
|
|
Without help, |
3 |
|
With some help, or |
2 |
|
Are you completely unable to do any shopping? |
1 |
4. |
Can you prepare your own meals: |
|
|
Without help, |
3 |
|
With some help, or |
2 |
|
Are you completely unable to prepare any meals? |
1 |
5. |
Can you do your own housework: |
|
|
Without help, |
3 |
|
With some help, or |
2 |
|
Are you completely unable to do any housework? |
1 |
6. |
Can you do your own handyman work: |
|
|
Without help, |
3 |
|
With some help, or |
2 |
|
Are you completely unable to do any handyman work? |
1 |
7. |
Can you do your own laundry: |
|
|
Without help, |
3 |
|
With some help, or |
2 |
|
Are you completely unable to do any laundry at all? |
1 |
8a. |
Do you take any medications or use any medications? |
|
|
(ASK Q. 8b) Yes |
1 |
|
(ASK Q. 8c) No |
2 |
8b. |
(ASK IF SUBJECT TAKES MEDICINE NOW) |
|
|
Do you take your own medicine: (CHECK BELOW) |
|
8c. |
(ASK IF SUBJECT DOES NOT TAKE MEDICINE NOW) |
|
|
If you had to take medicine, can you do it: (CHECK BELOW) |
|
|
Without help (in the right doses at the right time), |
3 |
|
With some help (take medicine if someone prepares it for you and/or reminds you to take it), or |
2 |
|
(Are you/would you be) completely unable to take your own medicines? |
1 |
9. |
Can you manage your own money: |
|
|
Without help, |
3 |
|
With some help, or |
2 |
|
Are you completely unable to handle money? |
1 |
Note on Scoring:
If fewer than 5 items are valid, then scoring cannot be done reliably.
Source: Lawton, M.P.; Moss, M.; Fulcomer, M.; and Kleban, M.H. A research and service-oriented Multilevel Assessment Instrument. Journal of Gerontology 37:91-99, 1982.
Scales to measure competence in everyday activities. Psychopharmacology Bulletin 24(4):609-614, 1988.
Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist 9:179-186, 1969.
Reproduced with permission from M. Powell Lawton, Ph.D.
Choose the best answer for how you have felt over the past week:
Answers in bold indicate depression, and each answer counts as one point. For clinical purposes, a score greater than 5 suggests depression and warrants a followup interview. Scores greater than 10 are almost always depression.
Source: Sheikh, J.I., and Yesavage, J.A. Geriatric Depression Scale (GDS): Recent evidence and development of a shorter version. Clinical Gerontologist 5(1&2):165-173, 1986.
Brink, T.L.; Yesavage, J.A.; Lum, O.; Heersema, P.; Adey, M.B.; and Rose, T.L.
Screening tests for geriatric depression. Clinical Gerontologist 1:37-44, 1982.
Yesavage, J.A.; Brink, T.L.; Rose, T.L.; Lum, O.; Huang, V.; Adey, M.B.; and Leirer, V.O.
Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research 17:37-49, 1983.
For the 20 items below, circle the number next to each item that best reflects how frequently the indicated event was experienced in the past 7 days.
|
|
Rarely or none of
the time |
Some or a little of
the time |
Occasionally or a
moderate amount of time |
Most or all of the
time |
|
|||||
DURING THE PAST WEEK: |
|
|
|
|
|
1. |
I was bothered by things that usually don't bother me. |
0 |
1 |
2 |
3 |
2. |
I did not feel like eating: my appetite was poor. |
0 |
1 |
2 |
3 |
3. |
I felt that I could not shake off the blues even with help from my family or friends. |
0 |
1 |
2 |
3 |
4. |
I felt that I was just as good as other people. |
0 |
1 |
2 |
3 |
5. |
I had trouble keeping my mind on what I was doing. |
0 |
1 |
2 |
3 |
6. |
I felt depressed. |
0 |
1 |
2 |
3 |
7. |
I felt that everything I did was an effort. |
0 |
1 |
2 |
3 |
8. |
I felt hopeful about the future. |
0 |
1 |
2 |
3 |
9. |
I thought my life had been a failure. |
0 |
1 |
2 |
3 |
10. |
I felt fearful. |
0 |
1 |
2 |
3 |
11. |
My sleep was restless. |
0 |
1 |
2 |
3 |
12. |
I was happy. |
0 |
1 |
2 |
3 |
13. |
I talked less than usual. |
0 |
1 |
2 |
3 |
14. |
I felt lonely. |
0 |
1 |
2 |
3 |
15. |
People were unfriendly. |
0 |
1 |
2 |
3 |
16. |
I enjoyed life. |
0 |
1 |
2 |
3 |
17. |
I had crying spells. |
0 |
1 |
2 |
3 |
18. |
I felt sad. |
0 |
1 |
2 |
3 |
19. |
I felt that people disliked me. |
0 |
1 |
2 |
3 |
20. |
I could not get "going." |
0 |
1 |
2 |
3 |
Scoring: Since items 4, 8, 12, and 16 reflect positive experiences
rather than negative ones, the scale should be reversed on these items so that
0 = 3, 1 = 2, 2 = 1, and 3 = 0. To determine the "depression score,"
add together the number for each answer. The score will be somewhere in the
range of 0 to 60. A score of 16 or greater indicates that some depression may
have been experienced in the past week.
Source: Radloff, L.S. The CES-D Scale: A self-report depression scale
for research in the general population. Applied Psychological Measurement 1(3):385-401,
1977.
Check the appropriate answer |
|
||||
1. In the last three months, have you been dieting to lose weight? |
|
||||
|
___YES |
___NO |
|
|
|
IF YES: How many pounds have you managed to lose? |
|
||||
|
___0 |
___1 - 3 |
___4 - 7 |
___8 or more |
|
|
|
||||
2. In the last three months, have you performed physical activity or exercise in your leisure time at least 20 minutes without stopping, enough to make you breathe hard and/or sweat? |
|
||||
|
___YES |
___NO |
|
|
|
IF YES: On average, how many days per week have you been exercising |
|
||||
|
___1 - 2 |
___3 - 4 |
___5 - 6 |
___Every day |
|
|
|
||||
3. In the last three months, have you been smoking cigarettes at all? |
|
||||
|
___YES |
___NO |
|
|
|
IF YES: On average, how many cigarettes have you been smoking each day? |
|
||||
|
___1 - 9 |
___10 - 19 |
___20 - 29 |
___30 or more |
|
|
|
||||
4. In the last three months, have you been drinking alcoholic drinks at all (e.g., beer, wine, sherry, vermouth, or hard liquor)? |
|
||||
|
___YES |
___NO |
|
|
|
IF NO, go to question 5. |
|
||||
IF YES, ANSWER 4a through 4c. |
|
||||
4a. On average, how many days per week have you been drinking beer or wine coolers? |
|
||||
___None |
___1 - 2 |
___3 - 4 |
___5 - 6 |
___Every day |
|
On a day when you have had wine, sherry, or vermouth to drink, how many glasses, bottles, or cans have you been drinking? |
|
||||
___1 - 2 |
___3 - 4 |
___5 - 8 |
___9 - 14 |
___15 or more |
|
AND |
|
||||
4b. On average how many days per week have you been drinking wine, sherry, or vermouth? |
|
||||
___None |
___1 - 2 |
___3 - 4 |
___5 - 6 |
___Every day |
|
On a day when you have had wine, sherry, or vermouth to drink, how many glasses have you been drinking? |
|
||||
___1 - 2 |
___3 - 4 |
___5 - 8 |
___9 - 14 |
___15 or more |
|
AND |
|
||||
4c. On average how many days per week have you been drinking liquor (gin, vodka, rum, brandy, whiskey, etc.)? |
|
||||
___None |
___1 - 2 |
___3 - 4 |
___5 - 6 |
___Every day |
|
On a day when you have had liquor to drink, how many single shots have you been drinking? |
|
||||
___1 - 2 |
___3 - 4 |
___5 - 8 |
___9 - 14 |
___15 or more |
|
|
|
||||
5. In the last three months have you felt you should: |
|
||||
a. lose some weight |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
b. cut down or stop smoking |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
c. cut down or stop drinking |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
d. do more to keep fit |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
|
|
||||
6. In the last three months has anyone annoyed you or got on your nerves by telling you to: |
|
||||
a. change your weight |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
b. cut down or stop smoking |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
c. cut down or stop drinking |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
d. do more to keep fit |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
|
|
||||
7. In the last three months, have you felt guilty or bad about: |
|
||||
a. your weight |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
b. how much you smoke |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
c. how much you drink |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
d. how unfit you are |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
|
|
||||
8. In the last three months, have you been waking up wanting to: |
|
||||
a. exercise to keep fit |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
b. smoke a cigarette |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
c. have an alcoholic drink |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
d. have something to eat |
___No |
___Sometimes |
___Quite Often |
___Very Often |
|
|
|
||||
9. Now that you have completed this form, do you think you currently have: |
|
||||
a. a weight problem |
___Definitely |
___Probably |
___No |
___Don't Know |
|
b. a smoking problem |
___Definitely |
___Probably |
___No |
___Don't Know |
|
c. a drinking problem |
___Definitely |
___Probably |
___No |
___Don't Know |
|
d. a fitness problem |
___Definitely |
___Probably |
___No |
___Don't Know |
|
|
|
||||
10. Thinking back, would you say at any time in the past you had: |
|
||||
a. a weight problem |
___Definitely |
___Probably |
___No |
___Don't Know |
|
b. a smoking problem |
___Definitely |
___Probably |
___No |
___Don't Know |
|
c. a drinking problem |
___Definitely |
___Probably |
___No |
___Don't Know |
|
d. a fitness problem |
___Definitely |
___Probably |
___No |
___Don't Know |
|
|
|
Scoring: The HSS contains four subscales: one measuring amount of
alcohol consumption (question 4 a, b, c; Kristenson and Trell, 1982), the CAGE
questionnaire (questions 5-8; Mayfield et al., 1974), one for self-perception
of current problem with alcohol (question 9), and one for self-perception of
past problem with alcohol (question 10). Consumption of 20 or more drinks per
week, two or more positive responses to the four CAGE questions,
self-perception of a current problem with alcohol use, or
self-perception of a past problem with alcohol use indicates problem drinking.
Source: Fleming, M.F., and Barry, K.L. A three-sample test of a masked
alcohol screening questionnaire. Alcohol and Alcoholism 26(1):81-91,
1991.
Indicators of alcohol consumption: Comparisons between a questionnaire (Mm-MAST), interviews, and serum _-glutamyl transferase (GGT) in a health survey of middle-aged males. British Journal of Addiction 77, 297-304, 1982.
Mayfield, D.; McLeod, G.; and Hall, P.
The CAGE questionnaire: Validation of a new alcoholism screening instrument. American Journal of Psychiatry 131:1121-1128, 1974.
Adams, W.L.; Barry, K.L.; and Fleming, M.F.
Screening for problem drinking in
older primary care patients. Journal of the American Medical Association 276(24):1964-1967,
1996.
Adams, W.L.; Yuan, Z.; Barboriak, J.J.; and Rimm, A.A.
Alcohol-related hospitalizations of
elderly people: Prevalence and geographic location in the United States. Journal
of the American Medical Association 270(10):1222-1225, 1993.
A Profile of Older Americans http://www.aoa.dhhs.gov/aoa/pages/profil95.html
Effects of alcohol on sleep. In: Gomberg, E.; Hedgedus, A.M.; and Zucker, R.A., eds. Alcohol Problems and Aging. Washington DC: National Institute on Alcohol Abuse and Alcoholism, in press.
Alterman, A.I.; Kushner, H.; and Holahan, J.M.
Cognitive functioning and treatment
outcome in alcoholics. Journal of Nervous and Mental Disorders 178(8):494-499,
1990.
American Psychiatric Association.
Diagnostic and Statistical Manual of Mental Disorders , 3rd ed., revised. Washington, DC: American Psychiatric Association, 1987.
American Psychiatric Association
Diagnostic and Statistical Manual of Mental Disorders , 4th ed. Washington, DC: American Psychiatric Association, 1994.
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James D. Baxendale, Ph.D.
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Gwendolyn G. Bennett
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Center for Mental Health Services
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Gayle Boyd, Ph.D.
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Prevention Research Branch
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Mildred Brooks-McDow, M.S.W., L.I.C.S.W.
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Carol Cober
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Peter J. Cohen, M.D., J.D.
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Rockville, Maryland
Dorynne Czechowicz, M.D.
Associate Director
Medical/Professional Affairs
Treatment Research Branch
Division of Clinical and Services Research
National Institute on Drug Abuse
Rockville, Maryland
Betty Davis
Senior Project Specialist
Social Outreach and Support Division
American Association of Retired Persons
Washington, D.C.
Loretta Finnegan, M.D.
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National Institutes of Health
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Linda S. Foley, M.A.
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Director
Treatment Improvement Exchange
Health Systems Research, Inc.
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Rizalina C. Galicinao
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Office of Minority Health
Public Health Service
Rockville, Maryland
Deborah Horan
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Special Issues
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Washington, D.C.
Alixe McNeill
Senior Program Manager
National Council on the Aging
Washington, D.C.
Reba L. Novich, M.S.W.
Resource Manager
National Resource Center
Osteoporosis and Related Bone Diseases
Washington, D.C.
Hila Richardson, Dr.P.H.
Deputy Director
Medical Research and Practice Policy
National Center on Addiction and Substance Abuse
Columbia University
New York, New York
Anita Rosen, Ph.D.
Senior Staff Associate for Aging
National Association of Social Workers
Washington, D.C.
Eleanor Sargent
Director
Clinical Issues
National Association of Alcoholism and Drug Abuse Counselors
Arlington, Virginia
Joanne G. Schwartzberg, M.D.
Director
Department of Geriatric Health
American Medical Association
Chicago, Illinois
Doralie L. Segal, M.S.
Senior Advisor
PHS Office of Women's Health
Medical Development Division
National Institute on Drug Abuse
Rockville, Maryland
Nancy J. Wartow
Policy Specialist
Administration on Aging
Washington, D.C.
Paul Wohlford, Ph.D.
Acting Branch Chief
Division of State and Community Systems Development
Center for Mental Health Services
Rockville, Maryland
Ruth Airey-Vidal
Coordinator
Wellness Initiative for Senior Educators
Sussex Council on Alcohol and Drug Abuse
Newton, New Jersey
Sharon Amatteti
Public Health Analyst
Office of Policy Coordination and Planning
Center for Substance Abuse Treatment
Rockville, Maryland
Mary Candace Burger, Ph.D.
Assistant Professor
Division of Geriatric Psychiatry
Department of Psychiatry
Vanderbilt Medical School
Nashville, Tennesee
James Donagher
Director
Senior Services
Special Populations of Office of Behavioral Health
Department of Mental Health and Addiction Services
Hartford, Connecticut
Charles M. Donahue, M.Div.
Community Liaison
Behavioral Health Network
Alexian Brothers Hospital
Saint Louis, Missouri
Nancy L. Erckenbrack
Regional Director
Operations and Housing
Long-Term Care Division
Providence Health Systems
Portland, Oregon
Hugh Everman
Staff Assistant
Department of Sociology
Morehead State University
Morehead, Kentucky
Robert S. Geissinger
Counselor
Division of Alcoholism and Substance Abuse
Washington State Department of Social and
Health Services
Lacey, Washington
Charles V. Giannasio, M.D.
Senior Consultant for Addictive Disorders
Northwest Institute of Psychiatry
Jenkintown, Pennsylvania
Robert K. Heaton, Ph.D.
Professor of Psychiatry
Neuropsychology Laboratory
University of California at San Diego
San Diego, California
Robert Holden, M.A.
Program Director
Partners in Drug Abuse Rehabilitation Counseling
Washington, D.C.
Ronald J. Hunsicker
Executive Director
National Association of Addiction Treatment Providers
Lititz, Pennsylvania
Carol L. Joseph, M.D.
Associate Chief
Staff for Geriatric and Extended Care
Honolulu VAMROC
Honolulu, Hawaii
Joseph Liberto, M.D.
Director
UAMC
Baltimore, Maryland
Jane E. Myers, Ph.D.
Professor
Department of Counseling and
Educational Development
University of North Carolina at Greensboro
Greensboro, North Carolina
Reba L. Novich, M.S.W.
Resource Manager
National Resource Center
Osteoporosis and Related Bone Diseases
Washington, D.C.
Robert Rawlings
Director
OBRA and LTC
Community Programs
Oklahoma Department of Mental Health
and Substance Abuse Services
Oklahoma City, Oklahoma
Patricia Reihl
Coordinator
Spring House
Paramus, New Jersey
Anita Rosen, Ph.D.
Senior Staff Associate for Aging
National Association of Social Workers
Washington, D.C.
Margaret M. Salinger, M.S.N., R.N., C.A.R.N.
National Nurses Society on Addiction
c/o Department of Veterans Affairs Medical Center
Coatesville, Pennsylvania
Eleanor Sargent
Director
Clinical Issues
National Association of Alcoholism and Drug Abuse Counselors
Arlington, Virginia
Timothy M. Scanlan
President
Addiction Specialists of Kansas
Wichita, Kansas
Larry I. Schonfeld, Ph.D.
Professor
Department of Aging and Mental Health
Florida Mental Health Institute
University of South Florida
Tampa, Florida
Anthony Sims
Acting Director
Office of Communications and External Liaison
Center for Substance Abuse Treatment
Rockville, Maryland
Richard T. Suchinsky, M.D.
Associate Chief
Addictive Disorders
Mental Health and Behavioral Sciences Services
Department of Veterans Affairs
Washington, D.C.
David O. Turner
Program Manager
Health Aging Program
Salt Lake County Aging Services
Salt Lake City, Utah
John W. Welte, Ph.D.
Research Scientist
Research Institute on Addiction
Buffalo, New York
Larry W. Whorley
Program Coordinator
Substance Abuse Treatment Program
Lexington, Kentucky
Figure 2-1 |
The DSM-IV defines the diagnostic criteria for substance abuse as a maladaptive pattern of substance use leading to clinically significant impairment or distress, as manifested by one or more of the following, occurring within a 12-month period: |
|
Source: Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition. Copyright 1994, American Psychiatric Association. |
|
The DSM-IV defines the diagnostic criteria for substance dependence as a maladaptive pattern of substance use, leading to clinically significant impairment or distress, as manifested by three or more of the following, occurring at any time in the same 12-month period: |
|
Source: Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition. Copyright 1994, American Psychiatric Association. |
|
|
Diagnostic criteria for alcohol dependence are subsumed within the DSM-IV's general criteria for substance dependence. Dependence is defined as a "maladaptive pattern of substance use, leading to clinically significant impairment or distress, as manifested by three (or more) of the following, occurring at any time in the same 12-month period" (American Psychiatric Association, 1994, p. 181). There are special considerations when applying DSM-IV criteria to older adults with alcohol problems. |
|
Criteria |
Special Considerations for Older Adults |
|
May have problems with even low intake due to increased sensitivity to alcohol and higher blood alcohol levels |
|
Many late onset alcoholics do not develop physiological dependence |
|
Increased cognitive impairment can interfere with self-monitoring; drinking can exacerbate cognitive impairment and monitoring |
|
Same issues across life span |
|
Negative effects can occur with relatively low use |
|
May have fewer activities, making detection of problems more difficult |
|
May not know or understand that problems are related to use, even after medical advice |
|
||
Variable |
Early Onset |
Late Onset |
Age at onset |
Various, e.g., < 25, 40, 45 |
Various, e.g., > 55, 60, 65 |
Gender |
Higher proportion of men than women |
Higher proportion of women than men |
Socioeconomic status |
Tends to be lower |
Tends to be higher |
Drinking in response to stressors |
Common |
Common |
Family history of alcoholism |
More prevalent |
Less prevalent |
Extent and severity of alcohol problems |
More psychosocial, legal problems, greater severity |
Fewer psychosocial, legal problems, lesser severity |
Alcohol-related chronic illness (e.g., cirrhosis, pancreatitis, cancers) |
More common |
Less common |
Psychiatric comorbidities |
Cognitive loss more severe, less reversible |
Cognitive loss less severe, more reversible |
Age-associated medical problems aggravated by alcohol (e.g., hypertension, diabetes mellitus, drug-alcohol interactions) |
Common |
Common |
Treatment compliance and outcome |
Possibly less compliant; Relapse rates do not vary by age of onset (Atkinson et al., 1990; Blow et al., 1997; Schonfeld and Dupree, 1991) |
Possibly more compliant; Relapse rates do not vary by age of onset (Atkinson et al., 1990; Blow et al., 1997; Schonfeld and Dupree, 1991) |
|
||
Drug |
Action |
Effects of Aging |
Analgesics |
||
Aspirin |
Acute gastroduodenal mucosal damage |
No change |
Morphine |
Acute analgesic effect |
Increased |
Pentazocine |
Analgesic effect |
Increased |
Anticoagulants |
||
Heparin |
Activated partial thromboplastin time |
No change |
Warfarin |
Prothrombin time |
Increased |
Bronchodilators |
||
Albuterol |
Bronchodilation |
No change |
Ipratropium |
Bronchodilation |
No change |
Cardiovascular Drugs |
||
Adenosine |
Minute ventilation and heart rate |
No change |
Diltiazem |
Acute antihypertensive effect |
Increased |
Enalepril |
Acute antihypertensive effect |
Increased |
Isoproterenol |
Chronotropic effect |
Decreased |
Phenylephrine |
Acute vasoconstriction |
No change |
|
Acute antihypertensive effect |
No change |
Prazocin |
Chronotropic effect |
Decreased |
Timolol |
Chronotropic effect |
No change |
Verapamil |
Acute antihypertensive effect |
Increased |
Diuretics |
||
Furosemide |
Latency and size of peak diuretic response |
Decreased |
Psychotropics |
||
Diazepam |
Acute sedation |
Increased |
Diphenhydramine |
Psychomotor function |
No change |
Haloperidol |
Acute sedation |
Decreased |
Midazolam |
Electroencephalographic activity |
Increased |
Temazepam |
Postural sway, psychomotor effect, and sedation |
Increased |
Triazolam |
Psychomotor activity |
Increased |
Others |
||
Levodopa |
Dose elimination due to side effects |
Increased |
Tolbutamide |
Acute hypoglycemic effect |
Decreased |
Source: Adapted from Cusack and Vestal, 1986. |
|
|||
Class |
Drug |
Brand Name |
Elimination Half-Life for Older Adults |
Benzodiazepines |
Alprazolam |
Xanax |
9-20 hours |
|
Chlordiazepoxide |
Librium |
5-30 hours, with short- and long-acting active metabolites |
|
Diazepam |
Valium |
20-50 hours, with short- and long-acting active metabolites effective up to 200 hours |
|
Lorazepam |
Ativan |
18-24 hours; clearance may be reduced in older adults |
|
Oxazepam |
Serax |
3-25 hours |
Serotonin agonist |
Buspirone |
BuSpar |
1-11 hours |
aRefer to product information insert for each drug as to its suitability for use in older adults. |
|
|||
Class |
Drug |
Brand Name |
Elimination Half-Life for Older Adults |
Benzodiazepines |
Flurazepam |
Dalmane |
72 hours, with short- and long-acting active metabolites |
|
Prazepam |
Centrax |
Less than 3 hours, with long-acting active metabolites |
|
Quazepam |
Doral |
25-41 hours, with long-acting active metabolites |
|
Temazepam |
Restoril |
10-20 hours |
|
Triazolam |
Halcion |
2-6 hours, with reports of clinical effects up to 16 hours following a single dose |
Imidazopyridine |
Zolpidem |
Ambien |
1.5-4.5 hours (longer in older adults) |
Chloral derivatives |
Chloral hydrate |
Noctec |
4-8 hours (loses effect in 2 weeks) |
Antihistamines |
Hydroxyzine |
Atarax |
1-3 hours |
|
Diphen-hydramine |
Benadryl (over-the-counter) |
8-10 hours |
|
Doxylamine |
Unisom (over-the-counter) |
8-10 hours |
aRefer to product information insert for each drug as to its suitability for use in older adults. |
|
|||
Class |
Drug |
Brand Name |
Comments |
Opiates |
Methylmorphine Morphine |
|
Common ingredient of analgesics. |
|
Codeine |
e.g., Tylenol III, Robitussin A-C |
Common ingredient of analgesics and antitussives. Can cause sedation and mild, dose-related impairment of psychomotor coordination. |
Opioids (synthetic) |
Hydrocodone |
Lortab |
Can produce dose-related respiratory depression and irregular breathing if taken in large amounts. |
|
Meperidine |
Demerol |
Contraindicated if patient is taking MAO inhibitors. Can produce psychomimetic effects and impair vision, attention, and motor coordination. |
|
Oxycodone |
Percodan/ Percocet |
Can produce substantial impairment of vision, attention, and motor coordination. |
|
Propoxyphene |
Darvon |
Can produce sedation and mild, dose-related impairment of psychomotor coordination. |
|
Pentazocine |
Talwin |
Age does not appear to increase sedative effects. |
aRefer to product information insert for each drug as to its suitability for use in older adults. |
|
|
Drug |
Adverse Effect With Alcohol |
Acetaminophen |
Severe hepatoxicity with therapeutic doses of acetaminophen in chronic alcoholics |
Anticoagulants, oral |
Decreased anticoagulant effect with chronic alcohol abuse |
Antidepressants, tricyclic |
Combined central nervous system depression decreases psychomotor performance, especially in the first week of treatment |
Aspirin and other nonsteroidal anti-inflammatory drugs |
Increased the possibility of gastritis and gastrointestinal hemorrhage |
Barbiturates |
Increased central nervous system depression (additive effects) |
Benzodiazepines |
Increased central nervous system depression (additive effects) |
Beta-adrenergic blockers |
Masked signs of delirium tremens |
Bromocriptine |
Combined use increases gastrointestinal side effects |
Caffeine |
Possible further decreased reaction time |
Cephalosporins and Chloramphenicol |
Disulfiram-like reaction with some cephalosporins and chloramphenicol |
Chloral hydrate |
Prolonged hypnotic effect and adverse cardiovascular effects |
Cimetidine |
Increased central nervous system depressant effect of alcohol |
Cycloserine |
Increased alcohol effect or convulsions |
Digoxin |
Decreased digitalis effect |
Disulfiram |
Abdominal cramps, flushing, vomiting, hypotension, confusion, blurred vision, and psychosis |
Guanadrel |
Increased sedative effect and orthostatic hypotension |
Glutethimide |
Additive central nervous system depressant effect |
Heparin |
Increased bleeding |
Hypoglycemics, sulfonylurea |
Acutely ingested, alcohol can increase the hypoglycemic effect of sulfonylurea drugs; chronically ingested, it can decrease hypoglycemic effect of these drugs |
Tolbutamide, chlorpropamide |
Disulfiram-like reaction |
Isoniazid |
Increased liver toxicity |
Ketoconazole, griseofulvin |
Disulfiram-like reaction |
Lithium |
Increased lithium toxicity |
Meprobamate |
Synergistic central nervous system depression |
Methotrexate |
Increased hepatic damage in chronic alcoholics |
Metronidazole |
Disulfiram-like reaction |
Nitroglycerin |
Possible hypotension |
Phenformin |
Lactic acidosis (synergism) |
Phenothiazines |
Additive central nervous system depressant activity |
Phenytoin |
Acutely ingested, alcohol can increase the toxicity of phenytoin; chronically ingested, it can decrease the anticonvulsant effect of phenytoin |
Quinacrine |
Disulfiram-like reaction |
Tetracyclines |
Decreased effect of doxycycline |
Source: Korrapati and Vestal, 1995. |
|
The Elderly Services at the Community Mental Health Center in Spokane, Washington, created the Gatekeeper Program to recruit, organize, and train nontraditional referral sources who may be in contact with at-risk older adults during their daily activities. The Gatekeepers - apartment managers, meter readers, bank personnel, postal carriers, utility repair personnel, and others - are the Elderly Services' eyes within the community. They are trained to identify at-risk older adults and provide referrals back to the program, which in turn will send a case manager and a nurse team leader to the individual's home for an evaluation. The program integrates case management for older adults with mental health and substance abuse treatment services, with the Gatekeepers serving as the case-finding component. Overall, the Gatekeepers now account for 4 out of every 10 admissions to this multidisciplinary in-home evaluation, treatment, and case management program. Nearly half of the older adults treated specifically for substance abuse were referred by the Gatekeepers (Raschko, 1990). |
|
|
|
|||
|
|
|
|
Scoring: Item responses on the CAGE are scored 0
for "no" and 1 for "yes" answers, with a higher score an
indication of alcohol problems. A total score of 2 or greater is considered
clinically significant. |
|
|
|
|
||
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
|
YES |
NO |
Scoring: Five or more "yes" responses are
indicative of an alcohol problem. For further information, contact Frederic
C. Blow, Ph.D., at University of Michigan Alcohol Research Center, 400 E.
Eisenhower Parkway, Suite A, Ann Arbor, MI 48108; (734) 998-7952. Source: Blow,
F.C.; Brower, K.J.; Schulenberg, J.E.; Demo-Dananberg, L.M.; Young, J.P.; and
Beresford, T.P. The Michigan Alcoholism Screening Test - Geriatric Version
(MAST-G): A new elderly-specific screening instrument. Alcoholism:
Clinical and Experimental Research 16:372, 1992. |
|
||
|
Dementia |
Delirium |
Characteristics |
|
|
Causes |
Most Common Causes
Common Metabolic/Toxic Causes
Common Infectious Causes
Other Common Causes
|
Common Intracranial Causes
Common Extracranial Causes
|
|
Dimension 1 - Acute Intoxication and/or Withdrawal Potential |
What risk is associated with the patient's current level of acute intoxication? Is there significant risk of severe withdrawal symptoms or seizures, based on the patient's previous withdrawal history, amount, frequency, and recency of discontinuation or significant reduction of alcohol or other drug use? Are there current signs of withdrawal? Does the patient have supports to assist in ambulatory detoxification, if medically safe? |
Dimension 2 - Biomedical Conditions and Complications |
Are there current physical illnesses, other than withdrawal, that need to be addressed or that may complicate treatment? Are there chronic conditions that affect treatment? |
Dimension 3 - Emotional/Behavioral Conditions and Complications |
Are there current psychiatric illnesses or psychological, behavioral, or emotional problems that need to be addressed or which complicate treatment? Are there chronic conditions that affect treatment? Do any emotional/behavioral problems appear to be an expected part of addiction illness, or do they appear to be autonomous? Even if connected to the addiction, are they severe enough to warrant specific mental health treatment? |
Dimension 4 - Treatment Acceptance/Resistance |
Is the patient actively objecting to treatment? Does the patient feel coerced into treatment? How ready is the patient to change? If willing to accept treatment, how strongly does the patient disagree with others' perceptions that he or she has an addiction problem? Does the patient appear to be compliant only to avoid a negative consequence, or does he or she appear to be internally distressed in a self-motivated way about his or her alcohol/other drug use problems? |
Dimension 5 - Relapse/Continued Use Potential |
Is the patient in immediate danger of continued severe distress and drinking/drug-taking behavior? Does the patient have any recognition of, understanding of, or skills with which to cope with his or her addiction problems in order to prevent relapse or continued use? What severity of problems and further distress will potentially continue or reappear if the patient is not successfully engaged in treatment at this time? How aware is the patient of relapse triggers, ways to cope with cravings to use, and skills to control impulses to use? |
Dimension 6 - Recovery Environment |
Are there any dangerous family members, significant others, living situations, or school/working situations that pose a threat to treatment engagement and success? Does the patient have supportive friendships, financial resources, or education/vocational resources that can increase the likelihood of successful treatment? Are there legal, vocational, social service agency, or criminal justice mandates that may enhance the patient's motivation for engagement in treatment? |
Source: American Society of Addiction Medicine, 1996. |
|
|
Emotional and Social Problems |
|
|
|
Medical Problems |
|
|
|
Practical Problems |
|
|
|
|
|
General Objectives/ Examples |
General Approaches/Examples |
Eliminate or reduce substance abuse |
Cognitive-behavioral (group or individual)
Group approaches
Medical
|
Safely manage intoxication episodes during treatment |
Medical
|
Enhance relationships |
Cognitive-behavioral (group or individual)
Group approaches
Marital and family approaches
Case management
Individual counseling
|
Promote health
|
Medical
Cognitive-behavioral (group or individual)
Group approaches
|
Stabilize and resolve comorbidities
|
Medical
Cognitive-behavioral (group or individual)
|
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